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Native valve infective endocarditis (IE) is rare, with an incidence of 3–7 cases per 100,000 person-years.1,2 Cardiac structural complications from local infection extension include valvular destruction, peri-annular abscess and fistula formation. Left ventricular pseudoaneurysm (LVP) from IE is exceedingly rare, occurring in <1% of cases, and is associated with high morbidity and mortality. Diagnosis is challenging due to nonspecific symptoms […]

Lisa Sarfaty: Help support Rare Disease Day

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Published Online: Feb 28th 2023

Our society partner, NORD (The National Organization for Rare Disorder) has planned several initiatives to support this year’s Rare Disease Day on 28 February. 

These activities are aimed at raising awareness about rare diseases and the challenges faced by people living with these conditions.  In this video, Lisa Sarfaty, NORD’s VP of Communication and Engagement, shares more details about these plans and importantly information on how you could get involved to help spread the message and bring more supporters to the cause.

Questions 

  1. The 28th February is Rare Disease Day, how is NORD supporting the day this year? (0:16)
  2. How could people get involved in supporting Rare Disease Day? (1:58)

Disclosures: Lisa Sarfaty has nothing to disclose in relation to this video interview.

Support: Interview and filming supported by Touch Medical Media Ltd. Interview conducted by Gina Furnival.

rarediseaseday.org

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